Sunday, February 3, 2019

Sunday, February 3, 2019, 3:00 pm

            Okay, everyone ready for this?? He called me over to his side.  He started to air write.  I ran to get my notebook.   He clearly wrote an L, followed by a wavy line that resembled the ups and downs of a heart monitor.  He tried again. L – something.  I asked, "You love me?" he nodded yes.  But continued trying to write.  He got as far as writing L-A-T.  After several attempts, I remembered the communication board.  It was hard for him to hold his hand steadily.  We got up to LAT with his own writing. Then he was pointing to the I?  What could that possibly mean?  We were thinking of a word that started with LAT.  Finally, I was able to let go of my assumptions and follow him.  He pointed to I, and then the letter N. LATIN. I asked him if he didn't like the Latin.   He gave a definite nod. "Do you want it in English?" He gave me a look that said, "What do you think?" He was complaining because the computer was playing Georgian chants in Latin and he didn't like it.  Man, am I ever dancing in the streets, well maybe in the corridors of this hospital.
            Despite everything, his respiration is still much too fast, and his heart rate/pulse is over 100.  I think his mind is clearer because they have reduced his pain meds.
            I received a letter from the brother of a friend who went through something similar. He was in and out of the hospital for 5 months with pancreatitis. We are in for a long, long haul.  We will need everyone's support. 
            Mike's sense of self is very involved with his work for the church.  He LOVES all he is doing here in Hawaii.  He says he should have been born wealthy so he could always volunteer. He is so happy working and serving all of you in this community. I am having everyone who is working with him call him Deacon Mike. 
            As I am typing this up, Mike is continuing to work on communicating with his 'sitter' using the communication board.

Sunday, February 3, 2019, 12:10pm


            Additional information from the respiratory therapist: The purpose of this tube is not increasing his oxygen intake but decreasing his CO2. This means it will take less work on his part to blow that stuff out.  Of course, he is also being provided with oxygen.
            He said if this didn't work, they had a more powerful option.

Sunday, February 3, 2019, 1:30 pm


            The respiratory therapist has changed his breathing mechanism again. He has upped the pressure of the input to 75%, I think. The object is to help him more effectively push out the Co2 in his lungs. This is still not a tube pushed down his throat.   Also, he is still breathing very quickly.  When he exhales, it sounds like he's playing the kazoo. I'm thinking he 'd taken up a musical instrument, and he's not doing a very good job. 
            The good news was that he is not restless.   I felt much better with the Catholic programs on his computer doing the job, a better job, of calming him down that I could do on my own.     I was sitting in his room doing other things.  BUT, always listening, listening to what is going on.

Wednesday, July 8th, 2020

             I slept well and was up before the alarm went off.  In June, it was light at 5:30, but now, it is not so much.  Being close to ...