Sunday, February 3, 2019

Sunday, February 3, 2019, 3:00 pm

            Okay, everyone ready for this?? He called me over to his side.  He started to air write.  I ran to get my notebook.   He clearly wrote an L, followed by a wavy line that resembled the ups and downs of a heart monitor.  He tried again. L – something.  I asked, "You love me?" he nodded yes.  But continued trying to write.  He got as far as writing L-A-T.  After several attempts, I remembered the communication board.  It was hard for him to hold his hand steadily.  We got up to LAT with his own writing. Then he was pointing to the I?  What could that possibly mean?  We were thinking of a word that started with LAT.  Finally, I was able to let go of my assumptions and follow him.  He pointed to I, and then the letter N. LATIN. I asked him if he didn't like the Latin.   He gave a definite nod. "Do you want it in English?" He gave me a look that said, "What do you think?" He was complaining because the computer was playing Georgian chants in Latin and he didn't like it.  Man, am I ever dancing in the streets, well maybe in the corridors of this hospital.
            Despite everything, his respiration is still much too fast, and his heart rate/pulse is over 100.  I think his mind is clearer because they have reduced his pain meds.
            I received a letter from the brother of a friend who went through something similar. He was in and out of the hospital for 5 months with pancreatitis. We are in for a long, long haul.  We will need everyone's support. 
            Mike's sense of self is very involved with his work for the church.  He LOVES all he is doing here in Hawaii.  He says he should have been born wealthy so he could always volunteer. He is so happy working and serving all of you in this community. I am having everyone who is working with him call him Deacon Mike. 
            As I am typing this up, Mike is continuing to work on communicating with his 'sitter' using the communication board.

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